Danielle's next 24 hours...

Hello friends...

I would like to shamelessly recruit prayers for Danielle and Dan and I over the next 24 hours. Tomorrow is the day we finally have her EEG ( to determine if she's having seizure activity or not ).  It is in the late afternoon.  Although the test itself makes me a bit nervous in regards to her tolerance to the test and the overall outcome, there are other things she / we need prayer for as well.

Her EEG has to be a "sleep deprived" test to have a better chance of seeing seizure activity if it's occurring. We are only allowed to let her sleep for 4 to 5 hours tonight.  I'm not really sure how we are going to pull this one off !  I have a feeling we will be having a 10 pm trip to Mc Donalds or something along those lines.

I would specifically like to pray for tomorrow leading up to the test, that we can get her through the day without letting her nap, and that emotionally and behaviorally she can endure this reasonably.  Given the fact that at her baseline she struggles with her emotional and behavioral stability...add to it sleep deprivation and the fact she hasn't been feeling well lately... and well... i'm thinking tomorrow may be one heck of a roller coaster ride.

Hopefully she will prove this all wrong, and we will have smooth waters and I will laugh at myself for worrying so much, but none the less, knowing a few extra prayers are covering her will ease my soul too.

Thanks for taking the time to read... and we'll keep you updated.

BOOK AUCTION FOR MERCY

https://www.facebook.com/lightingmercyspath

selling some of my good reads, auction style to raise funds for mercy's adoption grant... please check out the link and like the page to help me spread the word :)

Mercy: a word from Shea

Mercy is in need of a family... like our shea was at one time, she is living in an orphanage without the ability to achieve her true potential, without parents to love and defend her...please click on the link and help her grant to grow...even 5 dollars, every bit helps... lord we place Mercy in your hands. hold your babies close... we are blessed more than we know...
http://reecesrainbow.org/?s=mercy

Shea would like to speak on her behalf...

"She has spina bifida like me, i hope she gets a mom and dad, i want to be her friend, can people help her so she can come to a home, why are there still kids in groupa?, groupa is not fun..."

October and Awareness ~ My spin....

October brings "big stuff" in the Kulp home.  Not only is it the month to bring awareness to Spina Bifida for our Shea, but also Down Syndrome for Simon.  Poor Danielle... I'm not sure if Alfi's syndrome has a "month" you are just so unique!  Mommy will have to look into that.  Emily as for you - you are in your "terrific and terrible twos" so every single second we are all very well aware of you my love...!

With it being SB and DS awareness month the usual tradition is to tell stories of the wonderful goals my children are meeting, revel in the challenges we have overcome, post photos of your newest brave feat or shiny new equipment that is helping you to live life....

However, I am going to break tradition for now.  My dear Simon and Shea, this post is not about you... sorry lovies.  In honor of october and awareness, we look beyond our home... we look toward your roots, your history.

I will simply post this link today. http://reecesrainbow.org/?s=spina+bifida

For today, these are just a very very small sampling of beautiful, wonderfully made children, who also happen to have spina bifida, who happen to be alone is this world, who happen to need a family to love them and help them and hold them... and BE BLESSED BY THEM....

That is all my friends.... please look, please pray, please be aware of them, please do something for them...

something...

prayer....

donate....

adopt....

yes, I am pleading here...